Tag Archives: health

HEMOPHILIA: “A ROYAL DISEASE”

HEMOPHILIA is a rare blood disorder in which the patient’s blood does not clot normally because it lacks sufficient blood-clotting factors. An inherited disease, it is usually passed from mother to son. Because it was prevalent in European royal families, it is also known as “a royal disease.”

According to https://hemophilianewstoday.com/2017/05/24, it is believed that Victoria, Queen of England, was a carrier of hemophilia and that she passed the disease onto three of her children. Prince Leopold died at age 30 from a post-accident hemorrhage. Princess Alice and Princess Beatrice married royalty in other European countries.

Princess Alice, a hemophilia carrier, had a son who died from the disease in early childhood. One of her daughters, Irene, married Prince Henry of Prussia. She passed the gene to the German royal family. Alice had two sons, one of whom died at age 4. The other son died at age 56.

Alice’s second daughter, Alix, married Tsar Nikolas II of the Russian royal family. Tragically, all of their children were killed during the Russian revolution. The mutant gene ended there.

Princess Beatrice’s daughter, Victoria Eugenie, married King Alfonso XII of Spain. They had five children—one daughter and four sons. The daughter was a carrier of the hemophilia gene, but her children did not inherit the disease. Two of the four sons had hemophilia, but they died without having children.

It is interesting to note how the mutant gene, hemophilia, affected history. Today, hemophilia has affected people from all walks of life including actors, sports legends, and ordinary people. Richard Burton, the British actor and husband of Elizbeth Taylor, had hemophilia. In 1964, he and Elizabeth Taylor set up the Richard Burton Hemophilia Fund. He died in 1984 from a stroke at the age of 58.

Cyclist Barry Haarde is a hemophilia advocate who has cycled across the United States twice to raise awareness for the disease. He was infected with HIV and hepatitis C during a blood transfusion more than thirty years ago. He is the only man with HIV, hepatitis C, and hemophilia to have cycled across the country.

Ryan White was diagnosed with severe hemophilia A at three days old following extensive bleeding after his circumcision. During the 1980’s he contracted AIDS from unscreened blood transfusions, and he inadvertently became the poster boy for AIDS.

If you have a family member who suffers from hemophilia and needs private duty nursing, call American Home Health at (630) 236-3501. The agency can provide round-the-clock nursing care by Registered Nurses (RNs), Licensed Practical Nurses (LPNs), and Certified Nursing Assistants (CNAs). Our service area covers fifteen counties in Northern Illinois including Cook, Lake, McHenry, Boone, Winnebago, Ogle, Lee, DeKalb, DuPage, Kane, Kendall, LaSalle, Grundy, Will, and Kankakee. American Home Health is licensed by the State of Illinois and accredited by the Joint Commission. For further information, go to www.ahhc-1.com, or call (630) 236-3501.

—By Karen Centowski

LUPUS: “THE WOLF”

Forty years ago, a teacher at a Catholic elementary school invited the faculty members and their husbands and wives to a Christmas party in her home.  It was an opportunity to socialize, to have fun together.  The women wore their long dresses, and the men wore suits.  Everyone was excited to attend.

Since these faculty members worked together every day, they were at ease with each other.  As each couple arrived, the hostess and guests greeted them.  The house was filled with chatter and laughter.

When all guests had arrived, the hostess announced that she had a surprise for them.  She had enlisted the services of a palm reader, who would tell their futures.  Each person would meet individually with the palm reader in a separate room.  The palm reader would examine the individual’s hand life lines, love lines, and give a reading.  It was simply a party game.  What could go wrong?

Everyone was having a good time until Marie came out of her meeting with the palm reader.  Marie’s face was ashen.  She walked directly to her husband and whispered something to him.  The room became unnaturally quiet.  It was as if all of the air had gone out of a balloon.

Apparently, Marie had received bad news, very bad news.  The palm reader had told Marie that she had lupus, a fatal illness.  How would a palm reader know that?  And what is lupus?

According to WebMD, “Lupus is one of many disorders of the immune system known as autoimmune diseases.  The (patient’s) immune system turns against parts of the body it is designed to protect.  This results in inflammation and damage to various body tissues.  Lupus can affect many parts of the body, including the joints, skin, kidneys, heart, lungs, blood vessels, and brain.”

A National Resource Center on Lupus article at https://www.lupus.org/resources states that lupus was identified in the classical period (1230—1856).  The word lupus (Latin for “wolf”) is attributed to the thirteenth century physician Rogerius who used it to describe the erosive facial lesions which were reminiscent of a wolf’s bite.

If you have a family member who suffers from lupus and needs private duty nursing, call American Home Health at (630) 236-3501.  The agency can provide round-the-clock nursing care by Registered Nurses (RNs), Licensed Practical Nurses (LPNs), and Certified Nursing Assistants (CNAs).  Our service area covers fifteen counties in Northern Illinois including Cook, Lake, McHenry, Boone, Winnebago, Ogle, Lee, DeKalb, DuPage, Kane, Kendall, LaSalle, Grundy, Will, and Kankakee.  American Home Health is licensed by the State of Illinois and accredited by the Joint Commission.  For further information, go to www.ahhc-1.com, or call (630) 236-3501.

—By Karen Centowski

DIAGNOSIS: RHEUMATOID ARTHRITIS

Sandra was forty years old when she first noticed that the joints in her hands and toes were tender, warm, and swollen. In the mornings, the joints were stiff, and her body ached. She said she felt like she had been run over by a Mack Truck. She knew something was wrong so she made an appointment with her doctor.

The following week she met with her doctor. Sandra described her current symptoms (pain, stiffness, tenderness, warm and swollen joints). The doctor examined each joint, looking for tenderness, swelling, warmth, and painful or limited motion. He noted that the joints on both sides of her body were affected. (Rheumatoid arthritis tends to affect joints on both sides of the body.)

Next, the doctor ordered blood tests to measure inflammation levels. The blood tests also look for biomarkers such as antibodies (blood proteins) linked with rheumatoid arthritis.

Finally, he ordered a magnetic resonance imaging scan (MRI) to look for joint damage, such as loss of bone within the joint and narrowing of joint space. Note that the lack of joint damage does not rule out rheumatoid arthritis. It may mean that the disease is in an early stage and hasn’t yet damaged the joints.

While she waited for the results of the tests, Sandra researched osteoarthritis and rheumatoid arthritis on her computer. She discovered that osteoarthritis is the most common form of arthritis. According to https://www.everday health.com/rheumatoid-arthritis, it affects over 30 million adults in the United States. It is also known as degenerative arthritis, and it is also called wear-and-tear arthritis. Osteoarthritis typically occurs in older adults.

By contrast, rheumatoid arthritis is an auto-immune, inflammatory, systemic disease. The immune system attacks healthy cells in the body by mistake. This results in inflammation, pain, and swelling in affected body parts. Rheumatoid arthritis typically attacks several joints symmetrically. It may also affect organs such as the heart, lungs, and eyes.

The test results showed that Sandra did indeed have rheumatoid arthritis. What caused this? Doctors don’t know what causes rheumatoid arthritis. However, according to https://www.mayoclinic.org, the following risk factors have been identified:

  • Being female.
  • Your age. Rheumatoid arthritis most commonly begins between the ages of 40 to 60.
  • Family history. If a member of your family has rheumatoid arthritis, you may have an increased risk of getting the disease.
  • Smoking. Cigarette smoking increases your risk of developing rheumatoid arthritis.
  • Environmental exposure. Exposure to asbestos or silica may increase your risk for developing rheumatoid arthritis.
  • Obesity. People who are overweight or obese appear to be at somewhat higher risk of rheumatoid arthritis, especially women diagnosed with the disease when they were 55 or younger.

If you have a family member who has a serious illness and needs private duty nursing, call American Home Health at (630) 236-3501. The agency can provide round-the-clock nursing care by Registered Nurses (RNs), Licensed Practical Nurses (LPNs), and Certified Nursing Assistants (CNAs). Our service area covers fifteen counties in Northern Illinois including Cook, Lake, McHenry, Boone, Winnebago, Ogle, Lee, DeKalb, DuPage, Kane, Kendall, LaSalle, Grundy, Will, and Kankakee. American Home Health is licensed by the State of Illinois and accredited by the Joint Commission. For further information, go to www.ahhc-1.com, or call (630) 236-3501.

—By Karen Centowski

A FORMIDABLE FOE: LEWY BODY DEMENTIA

Born at St. Luke’s Hospital in Chicago on July 21, 1951, Robin Williams was the son of Robert Fitzgerald Williams, a senior executive in Ford Motor Company’s Lincoln-Mercury Division. His mother, Laurie McLaurin, was a former model from Jackson, Mississippi. During a television interview on Inside the Actors Studio in 2001, Williams credited his mother as an important early influence on his humor. He said he tried to make her laugh to gain attention.

Williams attended public elementary school at Gorton Elementary School in Lake Forest and middle school at Deer Path Junior High School. When he was twelve, his father was transferred to Detroit. When he was sixteen, his father took early retirement and the family moved to California.

He began performing stand-up comedy in San Francisco and Los Angeles in the 1970’s. He also starred in numerous films including Good Morning, Vietnam (1987) and the box office hit Mrs. Doubtfire (1993).

On August 11, 2014, the world learned that Williams had committed suicide by hanging himself in his California home. He was sixty-three years old. The autopsy report showed no alcohol or illegal drugs were involved. Prescription drugs in his system were at “therapeutic” levels. The final autopsy report noted that Williams had been suffering “a recent increase in paranoia.” An examination of his brain tissue suggested Williams suffered from “diffuse Lewy body dementia.”

According to a Mayo Clinic article “Lewy body dementia” at https://www.mayoclinic.org., “Lewy body dementia, also known as dementia with Lewy bodies, is the second most common type of progressive dementia after Alzheimer’s disease dementia. Protein deposits, called Lewy bodies, develop in nerve cells in the brain regions involved in thinking, memory and movement (motor control).

“Lewy body dementia causes a progressive decline in mental abilities. People with Lewy body dementia may experience visual hallucinations, and change in alertness and attention. Other effects include Parkinson’s disease-like symptoms such as rigid muscles, slow movement and tremors.”

If you have a family member who suffers from Lewy body dementia and needs private duty nursing, call American Home Health at (630) 236-3501. The agency can provide round-the-clock nursing care by Registered Nurses (RNs), Licensed Practical Nurses (LPNs), and Certified Nursing Assistants (CNAs), Our service area covers fifteen counties in Northern Illinois including Cook, Lake, McHenry, Boone, Winnebago, Ogle, Lee, DeKalb, DuPage, Kane, Kendall, LaSalle, Grundy, Will, and Kankakee. American Home Health is licensed by the State of Illinois and accredited by the Joint Commission. For further information, go to www.ahhc-1.com, or call (630) 236-3501.

—By Karen Centowski

HEADS-UP ON TRAUMATIC BRAIN INJURY

 

When you hear the words “traumatic brain injury,” what do you think of first? Serious head injuries on the battlefield? Head injuries in motor vehicle crashes? Concussions occurring in contact sports such as football? You might even think of Muhammad Ali, a famous boxer who endured repeated blows to his head and developed Parkinson’s disease at the age of forty-two.

According to the Centers for Disease Control and Prevention, falls were the leading cause of traumatic brain injury in 2013. In fact, falls accounted for 47% of all traumatic brain injury related emergency department visits, hospitalizations, and deaths in the United States. According to the CDC report at https://www.cdc.gov/traumaticbraininjury, “Falls disproportionally affected the youngest and oldest age groups. More than half (54%) of the TBI-related ED visits, hospitalizations, and deaths among children 0 to 14 years were caused by falls. Nearly 4 in 5 (79%) TBI-related ED visits, hospitalizations, and deaths in adults aged 65 and older were caused by falls.”

What is a traumatic brain injury? According to the article called “TBI: Get the Facts” at https://www.cdc.gov//traumaticbraininjury, “A TBI is caused by a bump, blow, or jolt to the head that disrupts the normal function of the brain. Not all blows or jolts to the head result in a TBI. The severity of a TBI may range from “mild” (i.e., a brief change in mental status or consciousness) to “severe” (i.e., an extended period of unconsciousness or memory loss after the injury). Most TBIs that occur each year are mild, commonly called concussions.”

You need to be especially careful to prevent your family members from falling. Make some small changes to make the home a safer place. Below are some tips from a Mayo Clinic article called “Fall Prevention: Simple Tips to Prevent Falls” at https://www.mayoclinic.org:

  • Remove loose rugs (throw rugs) from the home.
  • Immediately clean up spilled liquids, grease, or food.
  • Turn on the lights before going up or down stairs.
  • Place nightlights in the bedroom, bathroom, and hallways.
  • Store flashlights in easy-to-find places in case of power outages.

If you have a family member who has suffered a traumatic brain injury and needs private duty nursing, call American Home Health at (630) 236-3501. The agency can provide round-the-clock nursing care by Registered Nurses (RNs), Licensed Practical Nurses (LPNs), and Certified Nursing Assistants (CNAs). Our service area covers fifteen counties in Northern Illinois including Cook, Lake, McHenry, Boone, Winnebago, Ogle, Lee, DeKalb, DuPage, Kane, Kendall, LaSalle, Grundy, Will, and Kankakee. American Home Health is licensed by the State of Illinois and accredited by the Joint Commission. For further information, go to www.ahhc-1.com, or call (630) 236-3501.

—By Karen Centowski

KNEE REPLACEMENT SURGERY

Looking down the long hall from her office to the conference room, Elaine must have thought about the number of steps required to get there. Fifty? A hundred? Five hundred? A thousand? Even using the cane only helped a little. At least there were no stairs to climb.

And then there were the problems at home. How much longer would she be able to take her dog, Patrick, for a walk past the school playground where the children were playing hopscotch? Who would pull the weeds out of the flower garden in the front yard? How much longer could she make the beds or wash the dishes? So much of life depends on the ability to stand and walk.

Elaine’s primary care doctor referred her to an orthopedic surgeon. He recommended knee replacement surgery. He explained that nearly one million Americans undergo hip or knee replacement surgeries each year. He said the majority of these procedures were performed on patients over the age of 65. According to https://www.webmd.com/osteoarthritis/guide/knee, “Osteoarthritis is the main reason why people go for knee replacement surgery. The age-related condition is very common and occurs when cartilage—the cushion between the knee and bone joints—breaks down.” Elaine fit into those demographics.

The doctor explained that patients having knee replacements are normally discharged from the hospital three days after surgery. Elaine would need to be able to use a walker before she could be discharged. Then someone would need to be with her at home 24/7 during her recovery.

The doctor told Elaine that the initial short-term recovery stage lasts four to six weeks for most patients. Nurses would need to be with her to tend to her medical needs. Therapists would come to her home to provide physical therapy. The final phase, long-term recovery, could take as long as six months.

Patients need the encouragement of family and friends throughout the whole process of knee replacement surgery. It would be easy to feel alone and to get discouraged. If someone you know is having knee replacement surgery, send a card. Call your friend or family member. Make a gift basket and deliver it. Do something to let them know you care.

If you have a friend or family member who is having knee replacement surgery and needs private duty nursing, call American Home Health at (630) 236-3501. The agency can provide round-the-clock nursing care by Registered Nurses (RNs), Licensed Practical Nurses (RNs), and Certified Nursing Assistants (CNAs). Our service area covers fifteen counties in Northern Illinois including Cook, Lake, McHenry, Boone, Winnebago, Ogle, Lee, DeKalb, DuPage, Kane, Kendall, LaSalle, Grundy, Will, and Kankakee. American Home Health is licensed by the State of Illinois and accredited by the Joint Commission. For further information, go to our Web site, www.ahhc-1.com, or call (630) 236-3501.

—By Karen Centowski